People with dementia have this advice for others to help stay safe out walking

To help a person with dementia remain in the community, it is important that they know their way around as they are less likely to get lost.

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Sage, the project advisory group of people with dementia used a number of strategies to prevent them from getting lost and these included:

1. Acknowledging that a ‘blank’ might occur when out walking. This could cause a feeling of panic and this may make the ‘blank’ worse. Re-establishing calmness and waiting for the blank to clear was helpful.

2. Knowing the best time of day to go out for a walk when least confused – this may be in the morning or the afternoon – what ever time of day is best for you.

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3. Use a route that is familiar. Walk routes that you know well and are less likely to get confused by.

4. Ask people for help if you get lost. This may be once you remember what you want to ask.

5. Take time to work out and remember landmarks, and remind yourself about route. This may help later on.

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6. Repetition and routine were seen as key to continuing to stay safe. Pick a good route and stick to it.

7. Carry information to help you remember – home address and a phone number to contact someone.

8. Carry information about how to use mobile phone and who to call. You might ask a helpful person to make the call for you.

9. Carry ‘in case of emergency’ contact cards

10. Wear a bracelet that identifies that you have a memory problem.

If you are offered some technology, give it a try and see if it works for you – you may like it and it may help.

We hope this helps you prepare to stay safe out walking.

Physiotherapy students engage in navigation project

Physiotherapy students at the university of Southampton can hook up onto a live research project at the Faculty of Health Sciences.

Three students elected to get involved with the ‘Using Technology for Safer Walking’ project, Amy Broughton, Ange Briggs and Hayley Grainger.

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Studying research methods courses over years two and three of their degree, the students learned about methods, developed a proposal for the research, applied for ethical agreement in year two. In year three they undertake the project and write an article for publication about it.
Currently at the point of data collection, the students have developed many skills and implemented them. They reflected on learning about research methods connected to real life project:

Amy said

Having previously had no experience of research this module was very daunting for me as I had no idea what to expect.
Learning the theory and being able to put it into practise has provided an excellent learning environment. The opportunity of seeing a project through from start to finish and learning the ins and outs of what it takes to conduct research has provided me with much insight into the world of research, these skills will help me moving forward as I graduate and head into clinical practice.
The qualitative nature of this project has really highlighted how people interact with technology and their environment in day to day life, at times it seemed to make participants realise a few things about their own behaviours, seeing them reflect and realise was very interesting.

Hayley

Qualitative research allowed me to gain an insight into my study from a participant’s prospective, from a holistic view. Using a semi structured interview allowed participants to take the lead and created interesting results that could not be predicted prior to the study commencing.

Ange

I was fascinated to learn about Ethnographical studies and seeing first hand how people interact with their surroundings and react when under observation. I was also intrigued to witness how the theory behind navigating, (a person must understand the relationship between the map, the space and themselves within that space) played out in practice.

Their research project examined how nine healthy participants, fellow students, negotiated navigating an unknown path using three different types of aid. The first was to have verbal instructions to follow. The second was to use a smartphone with GPS on it, and the third was a map. The participants who were given verbal instructions fared worst of the three groups, as all three of the participants got lost. The smartphones users found their way, but were distracted during the task which could be a safety issue, and the map users found their way once they had managed to orientate themselves.
The knowledge of where you are and how to get around is often taken for granted. Giving verbal instructions is usual, but even in healthy adults proved problematic. This is very important for us to know when considering how people with dementia may struggle to navigate. Even very familiar surroundings may be confusing, and take some time to work out and find a way. Verbal instructions, for the provider seem obvious, but of course for the receiver, are frequently oblivious. This is also something to bear in mind when we are thinking about how best to support a person with dementia – verbal instructions are unlikely to be effective.

Having completed the data collection, the students are ready to complete their analysis. We can update you further when that is complete and look forward to reading more about this fascinating addition to the Using Technologies for Safer Walking project.